Posts in the ‘crisis’ Category

Start from here

Tuesday, October 13th, 2009

startIt began a year ago. One test lead to a biopsy, which in turn led to 3 months of waiting. Waiting to see if my body would “take care of it.” I ate healthy, exercised, didn’t drink or smoke, so the doctor blamed stress. I turned my life upside down in the quest for stress-free living.

Another biopsy. A surgery.

Fatigue, bone-wearying fatigue, the kind where you barely make it work every day and want nothing but sleep.

A test. Another biopsy, followed by a two-week lapse into the border on despair.

A visit to an internal specialist, a work-up, a second opinion, allergy testing. A surprise ending from the second opinion – there’s nothing to worry about, the first doctor’s approach was aggressive and had severely overtreated me.

Just like that. Release. A clean bill of health.

The soul-tired feeling fell away within a few days… it took some time to sink in, but once it did my heart felt so light. Finally, finally my shoulders relaxed. I think they had been hunched for months, the constant companion of sad and tired eyes.

The actual tired feeling, it turns out, is the result of chronic untreated allergies. I am allergic to dust mites, mold, cat hair, trees, soy and wheat. I started medication immediately.

It’s only been a day, but already the constant fog has lifted. I have energy. Energy I wondered if I would ever have again – energy to blog, to read, to talk, to do laundry – even after a full day of work.

I have energy.

It’s true that you don’t know how valuable things are until they are gone. The nights I would cry out of frustration and exhaustion were more and more frequent. I had, ironically, spent a year trying to figure out how to not pack my schedule, only to find somewhere in the middle that I couldn’t do what I had been used to doing even if I wanted to.

But now it’s back. I have energy.

And I get to start again. I can start from here.

Photo credit: basegreen via Flickr.

Your practical guide to the first few days of a crisis

Monday, August 31st, 2009
From Lantzilla via Flickr.

From Lantzilla via Flickr.

One hopes to never get disappointing or shocking news, but life is difficult. We’re often dealt more than we think we can handle and are seldom equipped with the right tools to do so. At least, that’s been my experience. We can spend a lot of time spinning our wheels and engaging in unhelpful activities. All we really want after a while is to move on. Here’s how I deal with the first stages of a crisis and get to a place where I can begin actually dealing with the problem.

Note: For those who read my blog, you know that I underwent a surgery I thought would put an end to this year’s health problems. Last week I got word that it didn’t and that I could be in for a longer process than I thought. While it’s not serious, it’s emotionally stressful. I went through all kinds of emotions and wrote all kinds of blog posts. Finally, I realized the only advice I could rightfully give is how to survive the first days of shock and how to move out of it, because that’s what I wanted to read.

Let it out.
It’s natural to be upset, disappointed, angry, frustrated and/or shocked. I was all of these things. I spent pretty much the first four hours oscillating between anger and tears. I always know I’m going to go through this, so I just let it come. This isn’t a stage to short-cut. It will come out sooner or later, and it’s been my experience that later is worse.

Make the space to regroup.
You can’t just jump back into life and work like nothing’s going on, as tempting as it is. In my case, I got my bad news at the end of the day so I took the following day off. I needed the opportunity to get enough sleep, move at a natural pace through my morning and deal with any leftover emotions from the previous day.

Fill up your cup.
While I’m not religious, I believe that we all have a spiritual aspect to ourselves. I tend to think that we have spiritual reservoirs in which we make deposits and withdrawals. After a big withdrawal, it’s necessary to make some deposits. I call this “filling up my cup.” I spend time with family, watch a funny movie (laughter is a high-dollar deposit in my book), read meditation books, and hang around people who I think really have the life thing figured out. I always walk away from them feeling like they’ve rubbed off a little bit.

Process. Process. And process some more.
Emotions are flying, stress hormones abound. I’ve never been able to get a hold on a single sensible idea for more than 10 minutes when something like this happens. After every emotion possible has run out, then start processing them. Examine each emotion individually. There’s usually more than one factor playing into your emotional state. For me, anxiety over my job and leftover emotions from my past were showing up around the real problem. Separate your emotions out, deal with the ones you need to. I can toss out the job anxiety and regrets from my past. They don’t need to be here right now. It’s much easier to deal with one thing at a time.

Research. Ask questions.
Research does not equal Googling your condition. Good lord, no. If you want to send yourself to the padded cell, go for it. Find a legitimate source and start researching your options. Talk to a professional in the field and ask questions. It took me 5 days to ask my doctor what the heck all this meant. From there, I could start researching.

There’s a comfort in knowing. Fear of getting an answer we don’t want to hear can keep us from asking. It doesn’t make the answer any less true, unfortunately. Knowing exactly where I’m at allows me to figure out where I’m going. Think about it: if you asked me for directions to my house, my first question would be “where are you coming from?”

Make a battle plan.
I like the phrase “battle plan” because it suggests you are planning for a fight. And that connotes that you aren’t about to give up and let life steamroll you. This makes me feel empowered, as opposed to overpowered.

Start with the things that you can control. For me, it’s exercise, diet, and stress levels. So my battle plan pertains to those things. If you set yourself up to battle something you can’t control, you will lose in so many ways.

Detail your battle plan on paper. In what ways are you going to attack your situation? What are the things that can take a back seat in your life for a while? Who can you trust for good support? In my case, I write down my diet, my exercise schedule, and how I’m going to reduce stress. It’s important to write it down because at some point you’ll say either “I’ve got this down, I don’t need help” or “screw it, it’s not working anyway.” Been there, done that. It doesn’t work. If you’ve got it, you’ll forget it, and if you think it’s not working, then you should reevaluate, not throw it away.

Make a plan for when you lose your head again. You will probably become an emotional mess again at some point, so write down the process by which you got out of it this time (like this post!) so you can refer to it later. Write down the things that made you feel better (family, funny movies, coffee with friends) and the things that didn’t (isolating, eating comfort food, imagining the worst). When you are emotionally stressed, it’s easier to follow some self-tested steps than trying to figure it out all over again.

A friend of mine says that if you aren’t moving forward, you’re moving backward. At the very least, remember to keep moving forward.

5 Things Not to Say to People in a Health Crisis (and What to Say Instead)

Wednesday, May 13th, 2009

Last week I underwent a surgery I had been hoping to avoid. It was a dark cloud hanging over my head for 6 months. It started with a test, a biopsy, an ineffective attempt to rev up my immune system and a surgery.

The past 6 months have been an emotional rollercoaster as I faced the possibility of cancer and potentially damaging my child-bearing abilities. I had an amazing amount of support, not only from my loved ones and friends, but also from my friends in the blogosphere.

Let me say first that there is no wrong way to support a friend. But a health crisis can send a person into an emotional tailspin of anger, fear and loneliness. Here are a few things I learned along the way.

Don’t say: Lots of people go through it.
When I heard this (which was often since lots of women do have this surgery), it made my feelings seem insignificant. While it is soothing to some degree to know that you’re not going into completely uncharted medical territory, it is the first time for you and it shouldn’t be trivialized.

Do say: Here’s the contact information for someone who has gone through it.
I can’t count how many times people told me they knew someone who had the same surgery and how she was fine. But that didn’t lessen my fears. Great. Someone, somewhere has come out OK. Doesn’t help.

A few days before my surgery, a woman called me and said that she’d had the same surgery, although it had been 20-someodd years since. She told me exactly what she went through, from beginning to the end. That was the first time I felt comfortable.

So much of what we fear as humans is simply the unknown. The more firsthand information I acquired, the more at ease I felt. After my surgery, a few more women stepped forward and said they’d had it also. I wished that they had done so earlier.

Don’t say: There are people who’ve gone through worse.
I heard this a few times, and when I did, it made feel like total crap. Not only was I (still) facing surgery, but here I am feeling sorry for myself while children in Africa are dying of hunger and disease. Thanks for the helping of guilt – it goes great with my anxiety and fear.

Do say: Let me share my experience going through something worse.
Unless you’re the person who has gone through something worse, I wouldn’t touch this one. If you can’t offer sympathy, don’t offer guilt in its place. If you have faced a bigger challenge, then please share your experience.

An older gentleman friend of mine faced (and beat) cancer three times. Another girlfriend beat a brain tumor. Two of my aunts have in recent years survived breast and brain cancer. Having watched these people walk through their ordeals with grace and talked to them about their fears, where they found strength and courage, and how they coped, were invaluable lessons.

Don’t say: Keep your chin up.
The thing about clichés is that we don’t hear their meanings anymore. Our mind sort of glosses over them because we’ve heard them so much. Besides, who wants to keep their metaphorical chin up when they feel a punch coming?

Do say: Keep your shoulders back.
This is a challenge you’re facing, and you should be in full-on attack mode. It was hard to feel self-pity, sadness, fear, or weakness when I remembered to physically round my shoulders back and down. It made me feel strong, powerful, like I was ready for a fight. It’s sort of like the moment a runner laces her shoes up – her body is ready for the run. By keeping my shoulders back, I was ready to face my challenges head-on.

Don’t say: Don’t worry.
I know this is what people say when they’re searching for the right thing to say and it just isn’t coming. People who love us desperately want to see us feeling better, faster. And it seems like anytime someone said this to me, they were willing it with all their might to take the worry away from me. But someone in a crisis is going to worry. I felt like people were trying to shut me up sometimes, like closing their eyes to an ugly house in the neighborhood.

Do say: Tell me what you’re worried about.
I realize that my loved ones don’t want to think about the worst-case scenarios anymore than I do, but I needed to talk about what I was worried about. Would it be cancer? What if I can’t have children? What if something goes wrong in the surgery?

One of my tricks for beating fear is naming the monster. I ask myself what the worst-case scenario outcome is. That usually takes the fangs off a fear. I needed to be able to do that with someone close to me, to get it off my chest. My moods were so effected by my fears, that I would burst into tears at the breakfast table. “Don’t worry” ain’t gonna fix that. Talking it through will.

Don’t say: Everything will be fine.
This is a lot like “don’t worry” in that I think people say it when they have nothing else to say. I usually just sort of shook my head in agreement or mumbled a thank-you. It just doesn’t really say anything.

Do say: I’m praying for you, or I’m holding you in my thoughts.
While “you’re in my prayers/thoughts” sounds kind of clichéd, this is probably one of the things that warmed my heart the most and actually made me feel better when people said it. It told me that they cared, were thinking about me, and were offering to do the one thing they could actually do – pray for my well-being or send “good vibes” my way.

Even when I was an atheist, I welcomed people’s prayers in a crisis. I took a class in college about the mind-body connection and read about studies in which cancer patients who had an assigned prayer group praying for them survived at higher rates than control groups that did not have a prayer group. I believe in the power of lots of people sending positive thoughts and wishes for you into the universe.

My rollercoaster ended on Monday when my doctor declared me cancer-free. If I can learn to remove the stress in my life, I’ll (hopefully) never have to face it again. But that’s another post…

Photo courtesy My Lyn via Flickr.